Keeping Butterfly Boy's Dream Alive: The Government of Canada Workplace Charitable Campaign (GCWCC)
Tina Boileau has experienced what no parent should ever have to: watching her child suffer. Her son Jonathan Pitre, also known as Butterfly Boy, was born with Epidermolysis Bullosa (EB), an extremely painful, little-known disease with no cure. Despite living in constant pain, Jonathan never stopped trying to achieve his dream of raising awareness about EB and finding a cure. Sadly, Jonathan passed away before his dream could become a reality, but it carries on today through his mother.
In honour of EB Awareness Week and as part of the 2018 GCWCC, please join us for this special event with Tina to learn more about EB and how our support for the GCWCC can help keep Jonathan's dream alive.
Event Information
This learning activity is designed for all public servant groups and levels and is offered at no cost.
Ottawa
November 1, 2018 | 1:30 pm to 3:00 pm (EDT)
Tina Boileau, EB Mom, President, DEBRA Canada
Jean Cardinal, GCWCC Co-Chair
Bilingual with interpretation in both official languages
- Collaboration Lounge, Académie De-La-Salle, 373 Sussex Drive (Guigues Avenue entrance), Ottawa, Ontario
- Available across Canada by webcast
Information:
csps.registration-inscription.efpc@canada.ca
- Date modified:
